Poverty & Social Inclusion A Community-University Research Alliance (CURA) Agenda 9:00am – Welcome 9:15am – Overview of Project 9:45am – A History of Partnerships 10:00am – Your Place in this Plan 10:15am – Break 10:30am – Conversational Café 11:00am – Book Presentations 11:10am – Cake cutting celebration Research Team • • • • • • • • • • • • • • Dr. Cheryl Forchuk (UWO, LHRI) Susan Ouseley (Can-Voice) Betty Edwards (Can-Voice) Stewart Perry (Canadian Centre for Community Renewal) Mike Godin (CMHA-London) Sheela Subramanian (CMHA-Ontario) Mo Jeng (City of London) Richard Csiernik (King’s University College) Peter Hall (Simon Fraser University) Michael Buzzelli (UWO) Abraham Rudnick (UWO) Mark Speechley (UWO) Benita Cohen (University of Manitoba) Jeffrey Hoch (University of Toronto) Background: Poverty and Mental Health • In Canada, 27% of psychiatric survivors live in poverty, compared to 12.6% of non-disabled persons • A single person living on ODSP receives less than $12,000 per year (63% of poverty line) • 3 relational patterns between poverty and MH: – ‘Additive’ relationship (poverty’s adverse effects contribute to the poor functioning caused by illness) – ‘Interactive’ relationship (poverty’s potentially negative effects are intensified by presence of other illness factors) – ‘Transforming’ relationship (poverty and illness’ interrelation can result in each being different than when occurring separately) Background: Social Inclusion • Individuals with psychiatric disorders experience discrimination in the housing market, employment and social relationships • Loss of connections and housing are more related to societal responses to psychiatric illness than the illness itself • Social exclusion and discrimination for this population exacerbates the problems of poverty • Greater impetus on social inclusion for psychiatric survivors is still required to overcome the exclusionary nature of current social policies Current Project: Purpose and Goals • Overall purpose: – To better understand the inter-relationships between poverty and social inclusion for psychiatric survivors – To engender community-based initiatives to promote their effects – To identify and explore how psychiatric survivors can overcome existing marginalization and social disadvantage – To develop concrete data with community partners in order to increase our capacity to evaluate successful policies • Timeline: We have received a 5-year grant from SSHRC (March 2011 – February 2016) Components to Project • This CURA will consist of 3 components: 1. Research 2. Training (e.g. in the context of research projects, activities credited as part of coursework, etc.) 3. Community Capacity Development (e.g. workshops, seminars, publications, public lectures, etc.) Research: Quantitative Component • 380 individual interviews (190 men, 190 women) – Individuals will be contacted annually to complete a total of 4 interviews – Final expected (hoped for?) sample: 300 (Interviewing 380 in first year to account for potential drop out rates) • Representative of housing types (homeless/shelter, group home, independent living) and employment status as a proxy for a variety of economic situations • 2-hour structured interview: quality of life, housing history and preferences, community integration, social support, experience of stigma, well-being, service use Research: Qualitative Component • Open-ended questions in individual interviews (experience of poverty, experience of stigma, fairness of system) • Focus groups with key stakeholders: – Psychiatric survivors – Family members – Social service providers – Employers – Policy decision-makers Research: Policy and Ethical Analysis • Policy analysis will address policy implications that arise from the issues identified in the interviews • Policy documents related to income, employment and income support will be collected • The project’s empirical findings will be compared to ethical standards derived from welfare theory and accepted ethical principles of service providers Training Component • Multiple opportunities for university students of all levels to participate in CURA • Represented disciplines: Planning, Law, Nursing, Social Work, Philosophy, Psychology and Psychiatry – Research assistant positions and practice placements will be made available to students from all of these disciplines • A new graduate level interdisciplinary course will be developed • Employment for students to assist in data collection will be made available every summer of the project (6 employed currently) • Opportunities for community engagement Pulling it Together • Community projects – specific needs and solutions • Annual community forums – help identify emerging issues, feedback on research in process, community capacity building, engaging public Expected Outcomes • Increased understanding of poverty as experienced by psychiatric survivors and the role played by inclusion and exclusion • New university-level curricula and positions for students • Community-based projects addressing poverty and social inclusion on individual, community and societal levels • Critical assessment of current policies and recommendations for social inclusion strategies Contact • Academic Director: Cheryl Forchuk – UWO/LHRI – Phone: (519) 679-2111 ext. 86591 – E-mail: cforchuk@uwo.ca • Community Co-Directors: Susan Ouseley and Betty Edwards – Can-Voice – Phone: (519) 434-8303 – E-mail: canvoice@gtn.net Contact • Project webpage: – http://publish.uwo.ca/~cforchuk/cura2/ • CURA office: – London Health Sciences – Research – South Street Hospital, Room E208 NR – Phone: (519) 685-8500 ext. 75896 – Project Coordinator: Amanda Kurtz (email: Amanda.Kurtz@lhsc.on.ca) A History of Partnerships Partners from Previous CURA • • • • • • • • • Alcohol and Drug Services of Thames Valley At^Lohsa Native Family Healing Services Can-Voice City of London CMHA-London Concordia University Crouch Centre Community Resources King’s University College Lawson Health Research Institute Partners from Previous CURA • • • • • • • • London & Middlesex Housing Corporation London InterCommunity Health Centre London Mental Health Crisis Services London Police Services Margaret’s Haven Non-Profit Housing Ministry of Health and Long Term Care Mission Services of London Ontario Works Partners from Previous CURA • • • • • • • St. Joseph’s Health Care Street Connection The Salvation Army- Centre of Hope The Salvation Army – Men’s Hostel University of Waterloo University of Western Ontario WOTCH (Western Ontario Therapeutic Community Hostel) • Wilfred Laurier University • Women’s Community House Partnership • We can do a lot more together than separately! • Our partnerships are a precious resource that we need to treasure and continue to build upon Partners for Current CURA • Partners Involved in this Grant – – – – – – – – – – CMHA (Canadian Mental Health Association) London CMHA-Ontario CMHA-Sudbury Can-Voice Centre for Research and Education on Violence against Women and Children City of London, Community Services Department Lawson Health Research Institute London InterCommunity Health Centre MerryMount Children’s Centre Mission Services of London Partners for Current CURA • Partners Involved in this Grant – – – – – – – – – Neighborhood Legal Services Raising the Roof Regional Mental Health Centre The Salvation Army University of Manitoba – Nursing Western WOTCH (Western ON Therapeutic Community Hostel) Women’s Community House Youth Opportunities Unlimited Spotlight on: Can-Voice An example of one agency demonstrating a rich history of research leadership & participatory roles Research History: Can-Voice • Mid 1990s: Can-Voice began relationship with Dr. Forchuk when they were invited to participate in discussion for the next stages of Dr. Forchuk’s “Bridges” pilot project – This involved meeting with other consumer-survivor groups • 1998: 3-year grant for “Therapeutic Relationships from Hospital to Community” – Can-Voice had lead role for London peer support Research History: Can-Voice • 1999: United Way of London and Middlesex funded a seed grant to explore a Connections program with Dr. Forchuk • April 2000-2003: “Connections” – Trillium Grant for $655,000 – Can-Voice was the lead agency for this project & Sue Ouseley ED was the PI – Buddies were provided for individuals being discharged from the hospital into the community – Involved 11 CSIs from Windsor to Lindsey Research History: Can-Voice • 2000-2006: CURA1: Mental Health and Housing – Margaret’s Haven started as the lead community agency for this project – Can-Voice became the lead for the final 2 years of project (2005-2006) (S. Ouseley & B. Edwards co community directors) • 2003-2006: Can-Voice Executive Director Sue Ouseley was co-investigator on CIHR grant focusing on knowledge transfer related to transitional discharge – 40 hospital wards throughout Ontario and 26 consumer groups involved Research History: Can-Voice • 2003-2004: CIHR Travel Grant – Can-Voice ED Sue Ouseley was part of research team that traveled to Europe to assist in international development of transitional discharge model (Finland, Estonia, Scotland) • 2006-2008: “CIPHER-MH: Creating Interprofessional Collaborative Teams for Comprehensive Mental Health Services” – Helped 15 professions learn to work collaboratively with individuals with mental health challenges – Workshops were main teaching method – -Betty Edwards, Walter Osoka participated on steering committee and several subcommittees, 12 Can-Voice members were regular participants Research History: Can-Voice • 2011-2016: CURA2: Poverty & Social Inclusion – Can-Voice is the community co-chair for this project • Can-Voice has also participated in many other studies with Dr. Forchuk. Over the last 14 years these have included (to name a few): – Preventing Discharge to No Fixed Address (pilot, acute care, tertiary care and ER phases) – Youth Matters in London – Poverty and Mental Health A History of Partnership • Can-Voice provides one community example of the growth that can occur with long-standing relationships • Example demonstrates the greater potential by working longitudinally on linked projects • We have many other strong examples in our community – the continuity between CURA1 & CURA2 is a testament to this • We are all interested in meaningful partnership & involvement – not tokenism or simply endorsement Your Place in this Plan Your Place in this Plan: Subcommittee Opportunities Break & Conversational Café Feedback from Conversational Café Book Presentation • Hot off the press • Collection of articles from our previous CURA