Additional Table 1 : List of local ethics committees that granted approval for the access and use of the data in current study
Study
Breast Cancer Family Registry (BCFR)
(BCFR - addtional)
(BCFR - addtional)
(BCFR - addtional)
(BCFR - addtional)
(BCFR - addtional)
Baltic Familial Breast and Ovarian Cancer Consortium (BFBOCC)
BRCA-gene mutations and beast cancer in South African women (BMBSA)
Copenhagen Breast Cancer Study (CBCS)
Spanish National Cancer Centre (CNIO)
Country
USA
Australia
USA
USA
Canada
Canada
Latvia, Lithuania
South Africa
Denmark
Spain, Greece
CONsorzio Studi ITaliani sui Tumori Ereditari Alla Mammella (CONSIT TEAM)
Deutsches Krebsforschungszentrum (DKFZ)
Italy
Germany
(DKFZ - addtional)
Columbia
(DKFZ - addtional)
Pakistan
HEreditary Breast and Ovarian study Netherlands (HEBON)
Epidemiological study of BRCA1 and BRCA2 mutation carriers (EMBRACE)
Fox Chase Cancer Center (FCCC)
The Netherlands
UK and EIRE
USA
German Consortium of Hereditary Breast and Ovarian Cancer (GC-HBOC)
Germany
Genetic Modifiers of cancer risk in BRCA1/2 mutation carriers (GEMO)
Georgetown University (GEORGETOWN)
France, USA
USA
Gynecologic Oncology Group (GOG)
Hospital Clinico San Carlos (HCSC)
USA
Spain
Helsinki Breast Cancer Study (HEBCS)
Finland
Hungarian Breast and Ovarian Cancer Study (HUNBOCS)
Hungary
Committee approval
Institutional Review Board University of Utah
The University of Melbnourne Health Sciences Human Ethics
Sub-Committee
Columbia University Medical Center Institutional Review Board
Northern Californa Cancer Center Institutional Review Board
University Health Network Research Ethics Board
Mount Sinai Hospital Research Ethics Board
Centrālā medicīnas ētikas Komiteja
Univ. of Pretoria and Pretoria Academic Hospitals Ethics
Committee
De Videnskabsetiske Komiteer I Region Hovedsladen
Instituto de Salud Carlos III Comité de Bioética y Bienestar
Animal
Comitato Etico Indipendente della Fondazione IRCCS "Istituto
Nazionale dei Tumori"
Ethik-Kommission des Klinikums der Universität
Hospital Universitario de San Ignacio Comité de Investigaciones
y Etica
Shaukat Khanum Memorial Cancer Hospital and Research
Centre Institutional Review Board
Protocol Toetsingscommissie van het Nederlands Kanker
Instituut/Antoni van Leeuwenhoek Ziekenhuis
Anglia & Oxford MREC
Institutional Review Board Fox Chase Cancer Center
Ethik-Kommission der Medizinischen Fakultät der Universät zu
Köln
Comité consultatif sur le traitement de I'information en matière
de recherche dans le domaine de la santé
MedStar Research Institute - Georgetown University Oncology
Institutional Review Board
National Cancer Institute - Cancer Prevention and Control
Concept Review Committee
Comité Ético de Investigación Clínia Hospital Clínico San Carlos
Helsingin ja uudenmaan sairaanhoitopiiri (Helsinki University
Central Hospital ethics committee)
Institutional Review Board of the Hungarian National Institute
of Oncology
Univeristy Hospital Vall d'Hebron (HVH)
Institut Català d'Oncologia (ICO)
International Hereditary Cancer Centre (IHCC)
Iceland Landspitali - University Hospital (ILUH)
Interdisciplinary Health Research International Team Breast Cancer
Susceptibility (INHERIT)
Istituto Oncologico Veneto Hereditary Breast and Ovarian Cancer Study
(IOVHBOCS)
Kathleen Cuningham Foundation Consortium for Research into Familial Breast
Cancer (KCONFAB)
(KCONFAB - additional)
Mayo Clinic (MAYO)
Memorial Sloane Kettering Cancer Center (MSKCC)
(MSKCC - additional)
General Hospital Vienna (MUV)
National Cancer Institute (NCI)
Ontario Cancer Genetics Network (OCGN)
The Ohio State University Comprehensive Cancer Centre (OSU-CCG)
Odense University Hospital (OUH)
Swedish Breast Cancer Study (SWE-BRCA)
N.N. Petrov Institute of Oncology (NNPIO)
University of California Irvine (UCI, now BRICOH)
University of California Los Angeles (UCLA)
University of California San Francisco (UCSF)
UK and Gilda Radner Familial Ovarian Cancer Registries (UKGRFOCR)
(UKGRFOCR - additional)
University of Pennsylvania (UPENN)
Women’s Cancer Research Institute (WCRI)
Spain
Spain
Poland
Iceland
Quebec -Canada
Italy
Australia
Australia
USA
USA
USA
Austria
USA
Canada
USA
Denmark
Sweden
Russia
USA
USA
USA
UK
USA
USA
USA
The Hospital Universitario Vall d'Hebron Clinical Research Ethics
Committee
Catalan Institute of Oncology Institutional Review Board
Komisji Bioetycznej Pomorskiej Akademii Medycznej
(Pomeranian Medical University Bioethics Committee)
Vísindasiđanefnd National Boethics Committee
Comité d'éthique de la recherche du Centre Hospitalier
Universitaire de Québec
Centro Oncologico Regionale Azienda Ospedale Di Padova
Comitato Etico
Peter MacCallum Cancer Centre Ethics Committee
Queensland Institute of Medical Research - Human Research
Ethics Committee
Mayo Clinic Institutional Review Boards
Memorial Sloan-Kettering Cancer Center IRB
Human Biospecimen Utilization Committee
Ethikkommission der Medizinischen Universität Wien
NIH Ethics Office
Mount Sinai Hospital Research Ethics Board
Cancer Institutional Review Board
Den Videnskabsetiske Komité for Region Syddanmark
Regionala Etikprövningsnämnden Stockholm
N.N. Petrov Institional Ethical Committee
UC Irvine: Office of Research Administration Institutional
Review Board
UCLA Institutional Review Board
Committee on Human Research
Cambridge Local Research Ethics Committee
Roswell Park Cancer Institute IRB
University of Pennsylvania Institutional Review Board
Cedars-Sinai Institutional Review Board